Monday, June 14, 2010

What does a finger tell you?

It is amazing what a finger can tell you. There is the thumbs- up, the thumbs-down. You can point, scold, type, speak, and yes, you can even curse with just one finger (or at least I've been told this -:) . It is amazing. However, a few weeks ago Sam's finger told us some new and crazy things. They told us he wasn't getting as much oxygen as he is supposed to be getting. Let me back up and start from the beginning.

Sam has had on again, off again struggles with hearing for as long as I can remember. He will get ear infections on a regular basis, but tubes didn't seem to be the answer. It began as frustrating but quickly turned a corner and became heartbreaking as Sam would scream in frustration, "I CAN'T HEAR YOU!" Keep in mind that he wasn't being sassy when he said this, he was genuinely frustrated when he would turn his head to hear, we would say something, and he realized he just couldn't figure out what was being said. We ran through this cycle many times a year - and they lasted for quite some time. However, every hearing test came back within normal limits - barely, but within normal limits enough that hearing aides weren't the answer either.

We felt like we were chasing our tails and getting nowhere.

As an added bonus, earlier this year Sam began having trouble catching his breath. He would come into our room in the middle of the night and tell us he couldn't get enough air. He would be taking deep breaths to try and catch his breath. We saw the doctor with such frequency that I was certain they were going to designate a parking stall just for us. The entire staff knows us by name, sight, and I'm just sure we are going to be invited to the Christmas party. :)

Anyhoo....we saw the doctor, but still had no answers. Was it asthma? No. Was it allergies? Didn't seem to be. Was he allergic to his bedding? Nope. Were his lungs working? Yep. Were we frustrated? Yes. I even began to wonder if Sam was just doing the weird breathing thing out of habit. (By the way, this happened during the day, too. He would breathe normally about three or four times and then compensate with a huge intake of breath. He got so adept at this that he speaks through it, prays through it, and we generally ignore it now). I began to feel like I was making a mountain out of a mole hill, but then other parents were noticing too. The school nurse was noticing it. It felt oddly reassuring to know that it wasn't just good old mom and dad worrying about him.

When we finally saw the ENT which took FOREVER because they are booked out so far, I was certain that I knew what we would find - nothing. First was the hearing test - and of course it came back within normal limits - low normal, but normal. Then came the doctor's evaluation. Yep, lungs are clear - no problems getting air in and out of the lungs. But then he saw his tonsils and was amazed at how large they are. Sam has never had strep, never had a problem with sore throats, and aside from hearing issues is a very healthy kid. However, the doctor decided to do an oxygen saturation test to see how he was breathing at night.

Sam was hooked up with one finger to a little monitor that would record his oxygen levels through the night. For it to be considered a significant problem his oxygen saturation level would need to drop 4% or more. As it turns out his oxygen saturation level began at 99% which is excellent. During the night it dropped to 89%. The doctor assured me that it didn't do this with enough frequency to alarm me - he was still getting oxygen, but he did merit further intervention. In addition, if his adenoids are at all comparable in size to his tonsils then they need to be removed as well. As it turns out, his adenoids being so large (if, in fact they are - we can't see them so we don't know for sure, but it is likely) is likely impacting his hearing. The ENT informed us that if they are proportionate in size to his tonsils then they are likely compressing his eustachian tubes affecting his hearing and also affecting the draining of his ears which then in turn leads to ear infections which leads to increased hearing difficulty, etc., etc.

So what do we do? A tonsillectomy and adenoidectomy. Of course I am nervous about having any of my children have surgery of any sort, but this is by all accounts a VERY simple surgery. In fact, it is SO simple and routine that we find ourselves wondering why we didn't come to this result faster. And we have every reason to hope that this will solve his breathing problems, and we are crossing our fingers that his hearing issues are resolved as well. I cannot tell you how exciting this is - for everyone, although Sam's excitement stems less from the fact that we have a probable solution to the problem. Rather, his excitement is due to the fact that he gets lots of ice cream and smoothies after his surgery - and I don't blame him.
So, that's what Sam's finger told us. It told us why he was struggling to breathe, particularly at night, and it inadvertenly may have lead us to the solution to his hearing issues. It's amazing what one finger can tell you - and man am I grateful.

6 comments:

Dave said...

Sam, I'm happy you'll get to enjoy so many treats soon. And I hope it takes care of all your other scary hassles too.

1crazymom said...

holy cow! i am almost in tears (happy tears) reading this! i am so glad that he is going to find relief from one (hopefully two) of the things plaguing him! i am so happy for him AND you and ted. we love you and are keeping our fingers crossed! kisses to all!
leigh anne

Jessie said...

What a relief! I hope it all goes well! Love you guys.

Rebecca said...

Sweet Sammy. I hope the surgery solves these problems...how frustrating to not be able to hear or breathe! When is his surgery?

Anne-Marie said...

Leslie-

Wow, it's fun to catch up on your life.

Our second son had humongous tonsils and even larger adenoids (on a scale of 1-5, 5 being the largest, his were a 5 ++. The doctor said he was amazed he could breathe at all.

Since then, no more runny noses, etc. He sleeps well and quietly (he used to gasp for air at night).

I hope things go well with the surgery. I think we're headed that way with our baby, her ears have constant fluid in them and lots of infections.

Oh, the joys of parenting!

The Ball Babies said...

Lindsay had huge tonsils too and had her ears tested as well. The hearing test said that she had some hearing impairment as well, but she said she could always hear us. Go figure. We ended up getting her tonsils taken out and she's been fine ever since. The surgery went well, it was just the recovery period at about 1 1/2 weeks post op that was rough - when the scabs start to heal. Smoothies, ice cream, and popsicles work wonders!

Who is your ENT? Ours was a woman but I can't remember her name. We really liked her!

Good luck with everything!